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From: Madalyn
Date: 24 Aug 2001
Time: 08:20:14
Remote Name: 208.191.201.117
Lisa-
Thanks for asking about my back, it varies between fine and miserable - today is pretty good.
It sounds like you still have enough hair to go out in public - that is encouraging.
I had IV anesthesia twice, about 2 weeks apart. I was completely out, but not for too long - maybe 15 minutes or so. They use a fluoroscope - sort of an x-ray TV - to watch the needle go in to make sure that they do not hit a nerve or your spinal cord. I am afraid of needles so they put me totally under instead of just making me woozy like they normally do for other patients. I wonder now if it would have made a difference to my hair if I only had the minimum anesthesia. I will ask Dr Whiting about sedation, but I think your doc is right. I looked up Valium tablets in the PDR and there is no mention of hair loss as a side affect.
Jacobsen really made me angry. He did not even want to tell me my diagnosis, he only wanted to tell me not to worry. I had to get the diagnosis from the nurse on the phone. (HINT: Always make friends with the nurses and office staff.) The nurse said my chart said TE, but I do not think Jacobsen spent enough time to truly eliminate all the other options. I have so many risk factors that need to be carefully considered. It could be an infection, because all this started soom after I started swimming regularly at the Y. If it is an infection, I do not want it to go untreated because that could lead to permenent loss. Also I have a history of positive ANA and I hope it is not alopecia areata. (I have a good friend, a guy, who has areata universalis. I never new him when he had hair, so he seems normal to me the way he is, but it has been many years since he lost his hair it still is a hard thing for him.) My grandmother had extremely thinned hair and wore a wig, but she was Polish and thought wigs were cool. My sister was recently diagnosed as grossly iron deficient. And I have hypothyroidism, but it is treated. So you see, they need to be sure that they get an accurate diagnosis if they are going ot treat me properly.
I was reading about TE on keratin.com yesterday and my "self-diagnosis-of-the-day" is Chronic TE. It is spooky how I fit the profile exactly. I am 41, I had a ton of hair before, and the loss seemed to start very quickly. I hope this is a good thing, because it sounds like CTE is not permanent and could maybe stop in 6 months (wishful thinking!) I also have a bit of receeding temples and fuzz where the hair should be. Keep your fingers crossed for me!
Are you having implants removed? Do you know about auto-immune disorders associated with implants? A friend of mine is a research doctor who had an article published - I think it was in JAMA - about her research on the talc, that they put on the surgical gloves and implants, causing immune problems. Talc cannot be broken down properly by the body, and the immune system sometimes freaks out. I do not know if this can lead to hair loss, though.
Good luck on your surgery. When is it?
Madalyn
From: hrhmryen
Date: 18 Oct 2007
Time: 00:28:57
Remote Name: 209.205.196.2
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