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From: Liz TO EMMA
Date: 2/23/2004
Time: 4:29:54 PM
Remote Name: 171.75.88.2
Dear Emma, I'm really sorry to intrude, you must think I'm stalking you--but I was reading your posts and they were literally making me cry. I know how obnoxious it must be to read complaints about 30-40 hairs falling out when your situation is far more difficult to cope with, at present. Many of us don't realize how lucky we are that our situations have not (yet?) progressed to the point where we can no longer function. I admire your strength, and really do sympathize with your feelings of hopelessness. Although I realize that my own battle has only just begun, I can say that it has had a serious impact on my ability to live life. It's pitiful, but since I buzzed my hair off over a month ago, I haven't seen ANY of my friends. I've been living like a hermit with my boyfriend, who understands... I feel lucky for that, but still, it isn't normal. I work from home as it is, and I rarely see anyone. This isn't the life I want. I've even considered dropping out of grad school because of this. I just can't think about anything except for my hair most of the time, and the whole crushing weight of this thing has changed the way I perceive myself. But as Beta has also found, it has given me inner resources I never knew I had, and heightened sensitivities in a way that will undoubtedly make me a better person in the long run.
But of course, the short run is the problem, and we have to get through it. I am still early on in the whole hairloss game, but as I have some concerns that are similar to yours, I thought that I would share them. Years ago, before I ever went on the pill, I tested lowish in estrogen. I am have not yet had it tested since going off, but fear the worst. My first post pill period was rather late and very light. I don't know what to do. My testosterone has also tested on the high end of the scale, although this used to be normal in pre-pill days. It seems like a recipe for disaster, and I worry and wonder whether going back on the pill is the best option for me. I need higher estrogen, I am sure of that. But what pill to take? I don't know. Like you, I am scared of all of them. Ortho tri seemed to give me problems I never had before, and Yasmin, which everyone seems to push, scares the daylights out of me. If there were some way to raise estrogen naturally, I would do it, but all that I thought was good for that (soy, epo), seems to be doing more harm.
I am so sorry for how much pain you must be feeling, Emma. You are considerably younger than a lot of the women on this site--including me--I'm 29. So I think you do have a good shot at improving your situation with the proper treatment. It sounds as if you may need to take something to raise your estrogen, whether a pill or some kind of HRT. (I probably need the same). I hope with all my heart that you find success with something soon. Don't feel obligated to write back--I know how draining all of this can be. I just wanted to share some of my own situation, in the event that it might help. And believe me, personalities do come through on this forum. Many people like and truly care about you. I spend a lot of time turning your situation over in my mind, trying to come up with the right answer. I believe many others are doing the same, and that the answer will be yours, eventually.
Liz
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